Minutes from Support Group Meetings

We will publish the support group minutes under this section to keep everyone informed of news/issues/general discussion from the meetings.  

Currently the NZ group doesn’t publish a newsletter. As the group gets bigger we may reconsider that.

Minutes from past Support Group Meetings are attached below in Microsoft Word format:

• 29 January 2004
• 24 November 2004
• 30 March 2005
• 8 June 2005
• 7 September 2005
• 19 October 2005
• 25 July 2006

Conference Update

Pictures of the NZ conference attendees

Current Issue @ August 2006

Current issue of concern to the group is extra help for VCFS children in the education system. Depending on your child’s symptoms it may be difficult to secure funding for teacher aide or assistance of other forms. However it is worth approaching your education provider and finding out who is the Special Needs Coordinator and pursuing this with vigour!

There are ways that schools/kindergartens etc. can help, even if it is dovetailing your child in with other children getting assistance.

VCFS kids tend to mask their issues by being good kids in class, therefore teachers often think parents are overreacting and try and dismiss your concerns or requests. Do not be foiled by this – pursue, pursue, pursue. You are your child’s champion in this!