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Welcome to the New Zealand VCFS Website
Parent to Parent New Zealand presents
Experts Down Under: Velo-Cardio-Facial Syndrome
Parent to Parent Waikato
DATE: Saturday 3 December 2011
WHERE: 28 Dinsdale Road
TIME: 9.30am to 4.30pm RSVP: 25 November 2011
PHONE: 07 848 1362 or EMAIL: waikato@parent2parent.org.nz
COST: $20
GUEST SPEAKERS (Presented from Parent to Parent Waikato)
Doctor Linda Campbell
Clinical Psychologist, University of Newcastle, Australia
Doctor Warwick Smith
General and Developmental Paediatrician with Kidz First Paediatric Service Counties Manukau
Maeve Morrison
Speech Language Therapist, Counties Manukau District Health Board
Our website is here to help you find information about Velo Cardio Facial Syndrome (commonly referred to as VCFS in this site, and by the support group). It covers what causes VCFS, the common symptoms, shares news from meetings and conferences, links to other worldwide sites and groups (who have more extensive information) and provides support to individuals affected by VCFS and their families/carers.
As fellow parents of children who have been diagnosed with VCFS, we know how scary and confusing this time can be.
Often we feel isolated and desperate for answers about this Syndrome and what exactly it will mean for our child. Why did this happen to us? Will our child be able to live a normal life? How many manifestations of VCFS will our child have?, are all very common questions that may arise when your child is first diagnosed with the Syndrome.
Latest Updates
- VCFS & 22q11 Magazine (Feb. '11) available for download (see Resources page for more information).
- Interested in taking a role organising the group? Read the Current Issue on the News & Issues page and let us know if you can help out.